Sorry about going MIA the last couple of weeks. My second book just released (Yaaaaay! *Blows noisemaker and strews confetti*) and I’ve been writing blog posts and answering interview questions and whatnot for that. But….I’m back! And I’m not talking about anything Pagan. (GG says I don’t have to apologize, but I’m going to anyway. Sorry!) But hey, it’s what’s on my mind (other than the book). I think issues with food is something that needs to be talked about more. A lot of people are sick, and we’re not helping them. I’m one of those people.
I’ve mentioned in the comments before that I have a digestive disorder of unknown type. Food makes me sick. This wasn’t a huge deal when I was a kid; I knew to avoid chocolate and not let people put cheddar in my scrambled eggs and be careful what I ordered at a Mexican food restaurant. I got older and realized that I couldn’t drink red wine without getting ill. Then after much curious study, I realized most people got drunk BEFORE they got sick. I get sick well before I get drunk. Until I figured out that my experience is not the typical one, I was seriously confused about why people like alcohol!
But then I got into my thirties, the avoid list kept getting bigger, and I was getting painfully ill at inconvenient times. About five years ago, back when I was a high school theater teacher, I cramped up so badly after lunch one day that I folded in half and had to get a substitute for the next two hours while I curled up in a ball in the greenroom of the theater, unable to move. That was the final straw. I went to the doctor. My doctor (whom I love and have gone to for years) checked me for celiac’s disease (no), told me I had IBS (irritable bowel syndrome; it’s as fun as it sounds), gave me a prescription for muscle relaxants and sent me to a specialist to confirm. The specialist said the same thing. One thing they both emphasized was that my concerns over food being the root of my problems was bogus, that for some people cortisol (the stress hormone) makes their digestive system stop working right. That was all. So if I never stress out again, I’ll be fine. Otherwise, I’m FUBAR. And here’re some pills.They don’t fix the problem, but I’ll recover more quickly from folding in half during work hours.
This sent me into a tailspin of confusion. Yes, stress makes it worse, but I know that certain foods make me sick. Give me fudge, and I’ll be in the bathroom throwing up in less than half an hour. It’s happened since I was a wee thing. It frustrated me to no end that neither of them would listen to me. I didn’t want a pill that masked symptoms. I wanted a solution. But I couldn’t figure out what chocolate, cheddar cheese, avocados, bananas and red wine had in common. I couldn’t figure out why mushrooms weren’t really a problem…unless I mixed them with spinach, which would make me absolutely nauseous.
My DH TheScott did some research on the interwebs, home of all knowledge both real and imaginary, and found a common denominator between the things that set me off: they all contain large amounts of broken down proteins called amines, particularly histamine. There were researchers out of Australia who had decided that living with IBS, though not immediately life threatening, can seriously impair quality of life. And they believed that food, in fact, is often the problem. Their research indicated that some people, for some reason, lack digestive enzymes–much like the commonly known and understood lactose intolerance, which is a lack of the enzyme lactase, but for other enzymes as well. This malfunction of the gut can cause a whole host of problems when the body can’t handle aspects of the otherwise perfectly healthy food we put into it. Why doctors easily accept that a person can be missing lactase but not any of the other digestive enzymes baffles me. But my disappointment with the medical community over this is a whole ‘nother post.
After reading their research, TheScott proposed I lack the enzyme diamine oxidase, and therefore had what was, at the time, called an “amine intolerance.†I looked at the list of foods I would have to avoid, and while everything that set me off was on it, I thought the list in its entirety was the worst list of no-nos the planet has seen and nobody should have to live like that. I insisted I had some other problem.
Please, gods, may it be some other problem.
Over the past five years I’ve been researching different forms of digestive disorders, from celiac’s to food allergies to intolerances and more. I’ve learned a lot about how digestion works and the many things that can go wrong. I’ve gone on a variety of diets in an attempt to find one that helps. I tried a gluten-free (helped, but not enough), low FODMAP diet (somewhat successful), Paleo (got me almost, but not quite, symptom free, and I still follow a more relaxed version of this that allows for limited dairy because I likes me some butter and cheese), and various other elimination diets (never successful). Finally this year, after reading a few more articles on that intolerance TheScott found years ago–now called “histamine intolerance‖I gave a low histamine diet a try.
Oh, #$%^&. It’s working. Idunna help me.
Next week, I’ll talk more about HIT (histamine intolerance). Meanwhile, if you have any questions about food reactions, I’m happy to share what I’ve learned! The most important thing I want people to know is that digestive disorders are real, and they wreak serious havoc on people’s lives. Meanwhile I’m working on prayers to Idunna, the goddess who tends the apple orchard of Asgard that keeps the gods young and healthy. If anyone has any experience working with her, I’d love to hear about it.
+ Featured Image: Still Life with Cheese and Wine by John F. Francis
17 comments
meagan says:
Feb 26, 2013
I have several family and friends who have IBS, ulcerative colitis and Chrohns. It never fails to amaze me about the GI doctors swear up and down, left and right, to hell and back again that it NEVER has anything to do with food. I just…I just don’t understand it.
I wish you a lot of luck, grace and perseverance with this lifestyle/food change! And may you continue to feel healthy, as well!
Jax says:
Feb 26, 2013
Thanks Meagan! It’s been frustrating. With the number of people who have these things, it seems like the American medical community would be paying more attention! But I have to find research coming out of Australia, Switzerland and the UK to get anywhere. *grumble, grumble* 🙂
Aj / Melia says:
Feb 26, 2013
Whenever I eat fresh bananas (baked are fine), fresh pineapple (don’t know about canned as I avoid the stuff), tomatillos, broccoli, desserts with egg whites or any baked item with more than two eggs (I assume again it is the egg whites) I get a horrendous gut ache that lasts at least until the next meal if not longer (so 3-4 hours minimum). Doc tells me to take Zantac before eating those items or after if I got unlucky. It rarely helps though sometimes reduces the pain. Any thoughts? I should add the broccoli is a relatively recent addition to the list.
Jax says:
Feb 26, 2013
DISCLAIMER: I AM NOT A DOCTOR OR A MEDICAL PRACTITIONER OF ANY KIND. I’ll tell you my thoughts to help you get started on your own research, but this is not in any way shape or form medical advice. Don’t sue me. 😉
First off, my understanding is that Zantac is for ulcers and heartburn, neither of which is cramping. My gut aches are caused by cramping. Muscle relaxants will relieve them. (Although taking muscle relaxants regularly is not something I am interested in doing!) While I do occasionally get heartburn, that’s a completely different feeling in a different place (it feels like burning pain over my heart, or like a full bubble that I’m afraid will burst if I take too big a breath). Cramping…feels like that time of the month by higher up. 🙂 It feels like a pinching squeeze or stabbing pain. I can get those in my stomach (sometimes) or right around my belly button (intestines–more common and more intense when they happen, to me anyway). So, that would explain (IM Non-Medical O) why Zantac isn’t helping.
Since little of the research comes from the Americas, tomatillos are not something I’ve found out much about. They are a nightshade, which some people have issues with (particularly if stiff joints are an issue), but if you have a nightshade sensitivity you’d also notice it with tomatoes, eggplant and/or bell peppers.
There are a lot of high histamine foods on your list–bananas (the more ripe the worse they are, and I’ve noticed that I handle them a lot better in baked goods than out, despite that not making any medical sense), pineapple and egg whites (particularly uncooked) are all either histamine heavy or histamine releasers. (Yeast is also a histamine problem, so the baked goods could be about the eggs or they could be about the yeast.)
I will add that eggs are a common food problem all on their own, although the specificity of egg WHITES is more common in histamine problems as opposed to egg problems.
Broccoli is not typically considered a problem for HIT, but it is a FODMAP which can exacerbate problems that already exist. Histamine levels also increase on everything the further they are from farm to table, so broccoli that’s been in the fridge for awhile has had a chance to develop histamines. Another thing you could look at is how you’re cooking it. For example, citrus causes a histamine release in the body, and butter develops histamine quickly if kept on the counter. So while raw broccoli you got at the farmer’s market that morning shouldn’t be a problem for HITers, broccoli that’s been in the fridge for awhile, cooked in butter that’s been sitting on the counter with a bit of garlic (for all it’s “miracle cure” advertising garlic is quite hard on a sensitive system), and then spritzed with lemon juice goes from “nothing wrong” to “histamine load” pretty quickly.
That’s one of the big problems with sussing out an intolerance is that they get complicated quickly based on many different factors. 🙂
Fructose malabsorption is another really common intolerance you might look at. Bananas (the more ripe, the worse) and broccoli can cause problems with that, but not eggs (although, again, eggs can be their own problem).
The longer a sensitivity goes without giving the gut a break, the more sensitive the person will be, so that would explain adding more foods as time passes. There is probably something else that you regularly eat that is keeping you right at your tolerance threshold and then these foods that you consume more rarely overflow the bucket. For example, I never realized tomatoes were a problem for me. But I ate them ALL THE TIME. Intolerances work like a bucket, and everybody’s bucket is a different size. You can eat a certain amount of the thing you’re sensitive too and be fine, but as soon as the bucket overflows…problem! So I was regularly filling my bucket with tomatoes, and then when I added a banana or piece of chocolate on top (things I ate far more rarely than tomatoes) I overflowed the bucket. I solely blamed the bananas/chocolate/other item when the problem was the combination. So think about the foods you eat most consistently, and there’s a good chance one of them is a major factor in your problem without you knowing it.
The most common way to test for an intolerance is an elimination diet in which you select a particular intolerance diet to try for a month and see if your symptoms improve. If you don’t want to wait for 3-4 weeks for an answer, you can take a night to nosh on a certain chemical and see if you are miserable and hugging a toilet the next day (just be careful not to do two at once; I did that and convinced myself I had fructose malabsorption, which I didn’t realize I’d inadvertently histamine bombed myself at the same time). With a histamine intolerance, people usually notice that they can’t drink red wine. So if you consumed reasonable quantities of red wine and brie (or other ripened cheese) with some nuts and a piece of chocolate one night and that made you horribly ill, it’s possible HIT is your problem, or part of it anyway. If you can eat that and be fine, then histamine is definitely not your problem. (Obviously drinking a bottle of Merlot by yourself and then getting sick may not be caused by histamines. 😉 And remember, too, that EVERYONE can histamine bomb themselves if they go overboard. We all have our thresholds for what our body can handle for every chemical we ingest. An intolerance is when you can’t handle a perfectly normal amount of something, not when you have a temporary problem because you went crazy eating abnormal amounts of something.)
For people with sensitivities, staying away from sugar and wheat is also very helpful in healing the system so that you have a little more flexibility within your intolerance. People with already irritated systems also might want to consider avoiding dairy and soy, as they can become problems for people with an already irritated system. One of the frustrating (and confusing) problems with an intolerance is that while there is usually a base problem, once the gut is damaged other things can temporarily become an issue, making it a challenge to figure out what the base problem actually is. Like, I am pretty sure at this point that HIT is my problem, but it’s been going on for so long now that I can’t handle an abundance of lactose. I wouldn’t call myself lactose intolerant, and it’s possible that once I heal my system I can go back to eating normal amounts of dairy. But while I’m still trying to heal up from years of living with too much excess histamine in my system, my body can’t handle lactose in anything other than very small quantities.
Last note, it sounds like you know which foods are causing the problem, which is good. One thing I did, however, discover along my journey is that my stomach is not where I think it is. Stomachs are right under the base of our rib cages, a little to the left of center. Immediate problems with a particular food will be felt there. Food enters the small intestine 2-4 hours later, and the problem (usually cramping) will move lower. Food spends a day or two in the intestines. So it’s good to think about where the pain is and what you had, maybe not at the last meal, but two meals ago or even yesterday and the day before when trying to determine which food is causing the problem.
Good luck! I’ll be talking more about HIT in particular next week, so if next week’s post sounds familiar to you (or not) that might help you decide if histamine is your issue or not.
Aj / Melia says:
Feb 27, 2013
No worries I know you are not a doctor and I will not sue you. 🙂 My cramping starts during to soon after a meal and is felt…below the stomach, so I’m guessing it is at the bottom of the stomach or the start of the small intestine. Can’t drink red wine…a genetic condition that runs in my family. It gives us migraines. Never had a problem with tomatoes, cheese, chocolate, dairy, citrus, peppers or any of the other things you’ve mentioned though it is possible that they do not trigger the “threshold” and yes green bananas are not the problem, it is the ripe ones. Application of heat to the area helps SOME but I’ve never tried a muscle relaxer for it since they tend to make me loopy. Fortunately, I’m not a fan of eggs or broccoli but I do miss bananas and pineapple.
I have noticed that if I accidentally eat something that triggers the cramping, it takes very little of something else on the list to trigger it again and it takes a long time between incidences for that to “heal”. You are right that it feels like menstrual cramps only higher. You are the first person I’ve talked with that had a clue to what was happening. Looking forward to your next article!
Jax says:
Feb 27, 2013
I’ll be writing a lot more next week! But your experience sounds a lot like mine. And enzyme deficiencies can be hereditary. My maternal grandfather probably had it and my mother seems to have issues as well, although hers manifest differently. The “red wine migraine” is a hallmark of DAO (diamine oxidase) deficiency (i.e. HIT). People normally notice it with red wine because, as I’ll explain next week, red wine not only has lots of histamine in it, but it also attacks your body’s ability to digest histamine AND causes your body to release extra histamine. So it’s a serious whammy to your system. I’ll talk more next week. It is a frustrating thing because our medical community doesn’t acknowledge it, which means few people know it exists and it can feel very lonely! I’m glad if I can help anyone suffering a similar problem to mine! 🙂
Aj / Melia says:
Feb 27, 2013
Interestingly enough, I have a physical scheduled for today so I’ll be asking my doctor about this. In doing a little bit of research this morning, it seems a lot of the problems that I’m having, especially since my son was born, may be related to this. You may have made my life a lot easier and better.
Jax says:
Feb 27, 2013
I have run out of reply room, so I’ll just scoot back to the left and say, “Yay!” over here. 🙂
Aj / Melia says:
Feb 27, 2013
So the doc says she has never heard of DIT and suggested an amalese (spelling?) deficiency. Says to take Beano before meals… [head/desk]
Aj / Melia says:
Feb 27, 2013
oops make that HIT.
Jax says:
Feb 28, 2013
Well, you could try the Beano. If your the problem is digesting oligosaccharides (a type of sugar found in many non-sweet things like legumes and some vegetables, inc broccoli) instead of histamine, that would help. The red wine, however, makes me think histamine. But, again, me=not a doctor. It is frustrating when there’s a growing body of peer reviewed literature out there on HIT and doctors have never heard of it. The digestive SPECIALIST told me my problem had nothing to with food and I should try yoga to help me stay calm. *sigh*
Aj / Melia says:
Feb 28, 2013
Yeah…the comment from her med student was that while red wine is known for its histamine issues, she hadn’t heard of it either. I’ll give it a try and see. I asked her today if she meant to for me to take it at any meal. She said every time I eat a complex carb. Joy.
Aj / Melia says:
Apr 9, 2013
Just a note to let you know my issue seems to be a lack of digestive enzymes. I didn’t realize how often I end up with a stomach ache after eating. I now take some chewable papaya tablets whenever I’m about to eat something that may bother it or whenever I’ve already ate something. Helps quite a bit.
Amanda says:
Mar 6, 2013
ohhhh I can relate so much. I have IBS, found out over 10 years ago, but been suffering with this since a teenager. I have not tried many drugs, only relaxants, anti – depressants and the fiber gel which made me worse. The relaxants eased the pain, the anti – depressants – well I’m not depressed at the moment. But according to the docter I am stressed – I must be. I always am after the docs
Amanda says:
Mar 6, 2013
trying to find out what foods I can eat again, because it seems to be triggered by vegtables dishes with tomatoes. Tomatoes has never bothered me before. I also find bread, wheat based foods start me off but sometimes I can tolerate them for a while untill my body has had enough of them. Also bothered by hormones too – every month I have a flare up. Al of this I have noticed myself with 0 help from the docs.
Jax – Yoga helps lol, onkly if your not having any flare ups, otherwise the yoga would send me back to the bathroom and cause more pain. I do yoga but can not do it in the middle of a IBS time. Cant do much of anything at that time, simply wait for it to pass and limit my foods, thats all I can do.
Meredith says:
Apr 9, 2013
Hello, I’m a fellow Austinite, former pagan (sort of all-inclusive now) and my teen was just diagnosed with IBS, but I don’t buy that. She reacts to food. I’m very curious about this histamine diet! Would you post more about this?
Meredith
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